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A worldwide patient support organization for people living and dealing with x-linked hypophosphatemia (XLH)

The XLH Network is proud to be celebrating our 25th year of service to the XLH community. We couldn't do it without your help! Please consider making a donation by clicking on the image below.

What is XLH

X-Linked Hypophosphatemia (XLH) is a rare genetic disorder that affects about one in 20,000 people. The key characteristic of XLH is a low level of phosphorus in the blood, called Hypophosphatemia. When a person is affected by XLH, their kidneys do not properly handle Vitamin D and phosphorus. This causes a variety of symptoms and disorders that usually affect their bones and teeth. Learn More...






Voice of the Patient Report.


Report and transcripts from
The Symposium on Hypophosphatemia






Upcoming Events

Follow the XLH Network Inc. Facebook Page for details on how to access these events.





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